This side of the charity is geared towards giving children the opportunity to visit other clinics and hospitals in the event that treatment in the UK may have been unsuccessful.

After the team at Great Ormond Street Hospital felt that they had exhausted all possibilities for treating Luna our only option was to seek alternative treatment overseas. Luna was a fighter and she taught us to never give up.

We searched all over the world for treatments to save her and took her to three different hospitals in the US for different therapies.

We know as parents that we tried everything possible for our little girl and we draw great comfort from that. Having gone down that path and done all the hard work and research we feel that the knowledge and experience we gained is something we would like to pass on to other parents.

We will fund travel and accommodation for families and costs towards preliminary tests to see if their child is suitable for further treatment.